In North America, 64% of adults and 25% of children are overweight or obese. We are bombarded by food; it is everywhere we turn. People with Prader-Willi syndrome (PWS) are an untapped expertise in combatting this problem. People with this genetic disorder gain approximately 20-30% more weight on 50% less calories, and are driven to eat. The traditional approach to this syndrome was to lock up all food, and control, restrict, and supervise all activity. While people with PWS were kept alive, they had no quality of life. Today, there are leaders within the PWS community who are taking cutting-edge approaches to combating both health and quality of life issues. Their secrets are revealed within this book. It is a must-read for anyone seeking: a new approach to societal health and wellness; an answer to weight maintenance for themselves or someone they love, and/or; a means of supporting persons with disabling conditions such as PWS and beyond to achieve meaningful, healthy lives.
This book explores health and wellness, with an emphasis on food drive, as well as disability culture, through the voices of self-advocates with PWS and families. It should be read by:
• Parents of all children (disabled and not) who want to instill positive, healthy food practices.
• Adults who have attempted diets and still not lost the weight. Adults who are seeking an alternate approach.
• Doctors and other medical professionals who seek continuing education.
• Teachers who are negotiating the balance between organic and teachable conditions.
• Self-advocates with disabling conditions who want to explore their own personal voice through the voices of others experiencing stigma and oppression.
• Family members of persons with disabling conditions who want to affirm their experiences and interpretations and learn how to navigate the systems.
• Government administrators who want to inform their funding allocation.
• Extended family, friends, and the public-at-large who want to understand disability and reexamine their attitudes.
• Human service workers who want to know how best to support persons with disabling conditions and how to listen to families.
• Anyone who wants to know about Prader-Willi Syndrome.
Price: $95.00
Pages: 132
Publisher: Emerald Publishing Limited
Imprint: Information Age Publishing
Publication Date:
06 September 2007
ISBN: 9781593118440
Format: Hardcover
BISACs:
SELF-HELP / Eating Disorders & Body Image, Coping with / advice about eating disorders, Eating disorders and therapy, Dietetics and nutrition
Chapter 1. Introduction
Chapter 2. An Obese Society
Chapter 3. Research with People with Prader-Willi Syndrome: Research at a Glance
Chapter 4. Angela's Story
Chapter 5. The PWS Literature
Chapter 6. Researching PWS
Chapter 7. Demographics
Chapter 8. Defining PWS
Chapter 9. Diagnosis
Chapter 10. Supported Living
Chapter 11. Attitudes
Chapter 12. Public-at-Large Attitudes
Chapter 13. Human Service Worker Attitudes
Chapter 14. Medical Professional Attitudes
Chapter 15. PWS Expert Attitudes
Chapter 16. Teacher Attitudes
Chapter 17. Across the LifeSpan
Chapter 18. Limitations and Further Research
Chapter 19. Paradoxes We Suffer
Chapter 20. Action
References