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Giving voice to the lived experiences of people with dementia across the globe, including Australia, Canada, Sweden and the UK, this critical and evidence-based collection engages with the realities of life for people living with dementia at home and within their neighbourhoods.
This insightful text addresses the fundamental social aspects of environment, including place attachment, belonging and connectivity. The chapters reveal the potential and expose the challenges for practitioners and researchers as dementia care shifts to a neighbourhood setting.
The unique ‘neighbourhood-centred’ perspective provides an innovative guide for policy and practice and calls for a new place-based culture of care and support in the neighbourhood.
Richard Ward is Senior Lecturer in Dementia Studies in the Faculty of Social Sciences at the University of Stirling.
Andrew Clark is Professor in the School of Health and Society at the University of Salford.
Lyn Phillipson is Principal Research Fellow in the School of Health and Society at the University of Wollongong.
1. Introduction: Placing dementia - Lyn Phillipson, Andrew Clark and Richard Ward
2. Understanding the meaning of neighbourhoods for people living with dementia: the value of a relational lens - Andrew Clark, Sarah Campbell, John Keady, Agneta Kullberg, John Keady, Kainde Manji, Elzana Odzakovic, Kirstein Rummery and Richard Ward
3. Moving house with dementia - Jill Batty
4. How do people with dementia manage problematic situations in public spaces? - Anna Brorsson
5. Making and maintaining neighbourhood connections when living alone with dementia - Elzana Odzakovic, Agneta Kulberg, Ingrid Hellström, Andrew Clark, Sarah Campbell, Kainde Manji, Kirstein Rummery, John Keady, Richard Ward
6. My neighbourhood, my future..? - Wendy Mitchell
7. Enabling the neighbourhood: a case for rethinking dementia-friendly communities - Richard Ward, Kirstein Rummery, Elzana Odzakovic, Kainde Manji, Agneta Kullberg, John Keady, Andrew Clark and Sarah Campbell
8. A conceptual framework of the person-environment interaction in the neighbourhood among persons living with dementia: a focus on out-of-home mobility - Kishore Seetharaman, Habib Chaudhury, Atiya Mahmood
9. We’re known as ‘the girls’ around town: support, isolation and belonging for a lesbian couple living with dementia - Lynda Henderson and Louisa Smith
10. Building community capacity for dementia in Canada: new directions in new places - Alison Phinney, Eric Macnaughton, Elaine Wiersma
11. The good, the challenging and the supportive: mapping life with dementia in the community using qualitative GIS - Chris Brennan-Horley, Lyn Phillipson, Louisa Smith and Dennis Frost
12. Growing back into community: changes through life with dementia - Dennis Frost
13. Dementia, tourism and leisure: making the visitor economy dementia-friendly - Joanne Connell and Stephen Page
14. Conclusion: Dementia emplaced - Andrew Clark, Richard Ward, Lyn Phillipson