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Life and health sciences and biomedical studies have
developed rapidly over the last few decades raising previously unanticipated
ethical concerns and questions. New and emerging technologies require novel
approaches, protocols and raised awareness to ensure adequate levels of
biosecurity and biosafety as well as the implementation of special measures to
prevent their potential misuse or dual use.
This volume brings together an international collection of
prominent ethics experts in health and life sciences, with the aim of providing
clear and comprehensive guidelines for the establishment of efficient ethical
strategies related to current and emerging biotechnologies and health research.
Important current topics in research ethics including
CRISPR-Cas9 technologies, gene editing, ‘big data’ in healthcare and life
sciences, nutrition in medicine among other topics have found their place in
this volume. In addition, the volume discusses the prospects for the
implementation of an international unification of ethical standards in life
sciences.
Price: $134.99
Pages: 239
Publisher: Emerald Publishing Limited
Imprint: Emerald Publishing Limited
Series: Advances in Research Ethics and Integrity
Publication Date:
06 December 2018
ISBN: 9781787435728
Format: Hardcover
BISACs:
SOCIAL SCIENCE / Research, Social research & statistics, SCIENCE / Research & Methodology, SCIENCE / Ethics
This volume compiles 11 essays by bioethics, medical, and other researchers from Europe and the US, who explore ethics and integrity in health and life sciences research. They address the work of the TRUST project towards counteracting the practice of ethics dumping through the development of tools for the improvement of research governance structures; lessons learned from care of patients with the Ebola virus; ethical challenges in the digital era; ethical aspects relating to big data; governance approaches to safety and security in research in relation to emerging technologies; governing gene editing in the European Union; the responsible and ethical use of genome editing technologies; ethical issues in dual-use brain science; the ethical challenges of informed consent, decision-making capacity, and vulnerability in clinical dementia research; ethical and moral responsibility in diet therapy research; and the mismatch of the science of nutrition and medical practice.
Dr Zvonimir Koporc is Associate Professor in Physiology at the Catholic University of Croatia. He has published extensively on immunology and edits the European Journal of Biology. He has achieved international recognition for expertise on research in life sciences (immunology) and professional standards in research ethics. His primary consultative activity in ethics and in life sciences. Zvonimir has acted as consultant, adviser and/or delivered training on research ethics at the European and national level. His PhD in chemistry was awarded by the Technical University of Vienna, Austria.
Introduction: Research Production in Life Sciences; Zvonimir Koporc
Chapter 1. Promoting Equity and Preventing Exploitation in International Research: The aims, work and output of the TRUST project; Julie Cook, Kate Chatfield & Doris Schroeder
Chapter 2. Ebola Virus Disease: A lesson in science and ethics; Nicola Petrosillo & Rok Čivljak
Chapter 3. Ethics Challenges in the Digital Era: Focus on medical research; Albena Kuyumdzhieva
Chapter 4. Big Data in Healthcare and the Life Sciences; Janet Mifsud & Cristina Gavrilovici
Chapter 5. Shaping a Culture of Safety and Security in Research on Emerging Technologies: Time to move beyond ‘simple compliance’ ethics; Monique Ischi & Johannes Rath
Chapter 6. Governing Gene Editing in the European Union: Legal and ethical considerations; Mihalis Kritiko
Chapter 7. The ARRIGE Project; Francois Hirsch & Lluis Montoliu
Chapter 8. Dual Use in Neuroscientific and Neurotechnological Research: A need for ethical address and guidance; James Giordano & Kathinka Evers
Chapter 9. Ethical Challenges of Informed Consent, Decision-Making Capacity and Vulnerability in Clinical Dementia Research; Pablo Hernández-Marrero, Sandra Martins Pereira, Joana Araújo & Ana Sofia Carvalh
Chapter 10. Diet Therapy - Effective Treatment but also Ethical and Moral Responsibility; Jasenka Gajdoš Kljusuri
Chapter 11. The Mismatch of Nutrition and ‘Medical Practice’: The wayward science of nutrition in human health; T Colin Campbell & T Nelson Campbell