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It’s hard today to remember how recently cancer was a silent killer, a dreaded disease about which people rarely spoke in public. In hospitals and doctors’ offices, conversations about malignancy were hushed and hope was limited. In this deeply researched book, Elaine Schattner reveals a sea change—from before 1900 to the present day—in how ordinary people talk about cancer.
From Whispers to Shouts examines public perception of cancer through stories in newspapers and magazines, social media, and popular culture. It probes the evolving relationship between journalists and medical specialists and illuminates the role of women and charities that distributed medical information. Schattner traces the origins of patient advocacy and activism from the 1920s onward, highlighting how, while doctors have lost control of messages about cancer, survivors have gained visibility and voice.
The book’s final section lays out provocative questions facing the cancer community today—including distrust of oncologists, concerns over financial burdens, and disparities in cancer treatments and care. Schattner considers how patients and their loved ones struggle to make decisions amid conflicting information and opinions. She explores the ramifications of so much openness, good and bad, and asks: Has awareness backfired? Instead, Schattner contends, we need greater understanding of cancer’s treatability.
— Lilith
In her innovative and insightful book, physician and cancer survivor Elaine Schattner explores the ways that we tell the story of cancer—and the ways we often fail to tell the real story of this notably complex and treacherous disease. The result is fascinating, enlightening, and, despite its difficult topic, even inspiring.
— Deborah Blum, Pulitzer Prize-winning science writer and director of the Knight Science Journalism program, Massachusetts Institute of Technology
In From Whispers to Shouts, oncologist and cancer survivor Elaine Schattner writes a comprehensive and enlightening cultural and political history of cancer care in America while giving us a clear-eyed perspective of the future. I highly recommend it to anyone interested in learning more about cancer, which should be all of us.
— Sandeep Jauhar, New York Times best-selling author of Heart: A History
From Whispers to Shouts is the first history of cancer to focus primarily on public perceptions of cancer. It is also a cri de coeur for a more upbeat assessment of past and future efforts to control the disease from an author who—as a doctor, patient, journalist and activist—is uniquely positioned to tell this story.
— Barron Lerner, author of The Breast Cancer Wars: Hope, Fear, and the Pursuit of a Cure in Twentieth Century America
An invaluable contribution to our knowledge about cancer.....should be read by anyone who wants to understand more about something that impacts the lives of so many. While cancer has had copious exposure in books, magazines, newspapers, journals, movies, television and in recent years social media, this is the first book to conduct an in-depth examination into how shifts in public perception of cancer have evolved over time.
— Eating My Words
A powerfully illuminating narrative of how things changed over the last century or so, both thorough and compelling.
— The Baffler
A cultural history that considers evolving societal views about cancer - including fear and silence - and their impacts on patients....an enlightening read.
— Lillith
Readers of all stripes will nevertheless come away with a deeper understanding of how cancer research, treatment, awareness, and activism in the United States have evolved in concert with public discourse and sentiment.
— H-Sci-Med-Tech
Recommended.
— Choice
Prologue
Part I. Cancer Awakens
1. Cancer, Kept Apart (Before 1900)
2. Cancer’s Spring (1900–1920)
3. Educational Campaigns (1920–1930)
4. Fighting Words (1930–1945)
5. A Celebrity Cause (1945–1960)
Part II. Cancer Comes Out
6. Our Bodies, Our Decisions (1960–1980)
7. Cancer in the Time of AIDS (1980–1990)
8. Enthusiasm (1990–2000)
9. Complications (2000–2010)
10. Cancer Everywhere (2010–2020)
Part III. Cancer’s Future
11. The Modern Patient’s Burden
12. Cancer Is Not As It Used To Be
13. Is Cancer Treatment a Luxury?
14. Has Awareness Backfired?
15. Can We Prevent Cancer?
Epilogue
Acknowledgments
Notes
Index