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Genetic Responsibility in Germany and Israel

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Prenatal diagnosis, especially noninvasive prenatal testing, has changed the experience of pregnancy and prenatal care. This book presents conversations between leading scholars from Israel and Ger...
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  • 28 February 2023
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Prenatal diagnosis, especially noninvasive prenatal testing (NIPT), has changed the experience of pregnancy, prenatal care and responsibilities in Israel and Germany in different ways. These differences reflect the countries' historical legacies, medico-legal policies, normative and cultural identities. Building on this observation, the contributors of this book present conversations between leading scholars from Israel and Germany based on an empirical bioethical perspective, analyses about the reshaping of 'life' by biomedicine, and philosophical reflections on socio-cultural claims and epistemic horizons of responsibilities. Practices and discussions of reproductive medicine transform the concepts of responsibility and irresponsibility.
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Price: $45.00
Pages: 380
Publisher: transcript publishing
Imprint: transcript publishing
Publication Date: 28 February 2023
Trim Size: 8.86 X 5.83 in
ISBN: 9783837659887
Format: Paperback
BISACs: PHILOSOPHY / Ethics & Moral Philosophy, MEDICAL / Ethics, SOCIAL SCIENCE / Popular Culture
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»Die Einblicke in die unterschiedlichen Sichtweisen auf PND, ein von unterschiedlichen gesellschaftlichen Diskursen geprägtes Verständnis von Verantwortung gegenüber Kindern, Familie und Gesellschaft sowie Schlussfolgerungen aus der Geschichte sind spannend und konfrontieren schnell mit eigenen Selbstverständlichkeiten. Ein wichtiges Buch in einem überaus gelungenen Format!«
Christina Schües is Professor of Philosophy at the Institut for the History of Medicine and Science Studies.

Frontmatter 1
Contents 5
Introduction - How Prenatal Diagnosis is Entangled in Historical and Social Contexts 9
1. Biological Reproduction, Offspring, and Radical Otherness 27
Commentary - The Ethics of Never Again 47
2. Origins and Practices of Genetic Risk and Responsibility 57
3. Non-Invasive Prenatal Testing in Germany and Israel 93
4. PND in Israel: Public Health Services and Uptake in Cultural Context 121
5. NIPT in Germany 137
Commentary - "Yes, but" vs. "no, but": Ambivalences towards Prenatal Diagnosis in Israel and Germany 159
6. Views on Disability and Prenatal Testing Among Families with Down Syndrome and Disability Activists 163
A Commentary from Disability Activism in Israel 191
A Commentary from Disability Studies in Germany 195
7. Socio-Cultural and Religious Views on Prenatal Diagnosis in Israel and Germany 199
8. What Does Prenatal Testing Mean for Women Who Have Tested? 227
9. "Something is Not Quite Right" - Two Cinematic Narratives about Decision-Making after Prenatal Diagnosis 253
10. The Unconditionality of Parent-Child Relationships in the Context of Prenatal Genetic Diagnosis in Germany and Israel 263
11. Can Not Wanting to Know Be Responsible? 303
12. Comparison through Conversation 347
Biographies 373