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Living with Brain Injury

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When Nancy was in her late twenties, she began having blinding headaches, tunnel vision, and dizziness, which led to the discovery of an abnormality on her brain stem. Complications during surgery ...
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  • 16 December 2013
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When Nancy was in her late twenties, she began having blinding headaches, tunnel vision, and dizziness, which led to the discovery of an abnormality on her brain stem. Complications during surgery caused serious brain damage, resulting in partial paralysis of the left side of her body and memory and cognitive problems. Although she was constantly evaluated by her doctors, Nancy’s own questions and her distress got little attention in the hospital. Later, despite excellent job performance post-injury, her physical impairments were regarded as an embarrassment to the “perfect” and “beautiful” corporate image of her employer.

Many conversations about brain injury are deficit-focused: those with disabilities are typically spoken about by others, as being a problem about which something must be done. In Living with Brain Injury, J. Eric Stewart takes a new approach, offering narratives which highlight those with brain injury as agents of recovery and change in their own lives.

Stewart draws on in-depth interviews with ten women with acquired brain injuries to offer an evocative, multi-voiced account of the women’s strategies for resisting marginalization and of their process of making sense of new relationships to self, to family and friends, to work, and to community. Bridging psychology, disability studies, and medical sociology, Living with Brain Injury showcases how—and on what terms—the women come to re-author identity, community, and meaning post-injury.

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Price: $107.00
Pages: 255
Publisher: NYU Press
Imprint: NYU Press
Series: Qualitative Studies in Psychology
Publication Date: 16 December 2013
Trim Size: 9.00 X 6.00 in
ISBN: 9780814764718
Format: Hardcover
BISACs: PSYCHOLOGY / General, SOCIAL SCIENCE / Gender Studies
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"Identity is one of the most enduring but complex topics in disability studies. How do you create a positive sense of self in the midst of a severely devalued and marginalized status? Sadly, the voices of people with brain injuries are virtually absent in the literature about their experience. J. Eric Stewart's research thus addresses a critical gap. But this is much more than a study about brain injury. With the help of ten gracious informants, Stewart has produced a stunning work on identity and human transformation. Through his scrupulous attention to his informants accounts and his painstaking analysis, he reveals a complex humanity in these women's experiences that is rarely associated with brain injury. By striking a creative balance between the personal story of recovery and its broader social/cultural significance, he contributes significantly to disability studies and provides illuminating reading for psychologists, students in disability and health fields, scholars studying embodiment and culture, and disability advocates. Above all, his fidelity to the women's stories shines through the book from beginning to end, serving as an instructive example of respectful and intuitive qualitative research. The result is a wonderful balance of intellectual sophistication and grounded, accessible information."