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The reality of disability—of what it means to be disabled—has primarily been written by non-disabled people. Disability and disabled individuals are often described with pity, presented as burdens, or are background figures in larger non-disabled narratives. Redefining Disability challenges the outsider-dominated approach to disability by centering the disabled experience.
This edited volume, featuring all disabled authors and creators, combines traditional academic works with personal reflections, visual art, and poetry. These works address disability and race, sexuality and disability, disability cultures, accommodation, self-diagnosis, and how we manage the obstacles ableist institutions place in our way. The authors address a variety of disabilities, including sensory, chronic pain, mobility, developmental disorders, and mental illness. It is through these testimonies that we hope to redefine disability on our terms; to clearly state that disability is not a bad word, and that all disabled lives have value.
Redefining Disability is interdisciplinary, with broad application for undergraduate courses, graduate seminars, or to read for pleasure. Each entry contains discussion questions and/or activities for educators to use in the classroom.
This edited volume, featuring all disabled authors and creators, combines traditional academic works with personal reflections, visual art, and poetry. These works address disability and race, sexuality and disability, disability cultures, accommodation, self-diagnosis, and how we manage the obstacles ableist institutions place in our way. The authors address a variety of disabilities, including sensory, chronic pain, mobility, developmental disorders, and mental illness. It is through these testimonies that we hope to redefine disability on our terms; to clearly state that disability is not a bad word, and that all disabled lives have value.
Redefining Disability is interdisciplinary, with broad application for undergraduate courses, graduate seminars, or to read for pleasure. Each entry contains discussion questions and/or activities for educators to use in the classroom.
Price: $145.00
Pages: 272
Publisher: Brill
Imprint: Brill
Series: Personal/Public Scholarship
Publication Date:
22 February 2022
ISBN: 9789004512696
Format: Hardcover
Praise for Redefining Disability:
Redefining Disability offers a unique and vivid combination of lucid explanations and evocative accounts. Featuring essay, narrative, poetry, and photography, this outstanding collection opens a creative window into the richness of disabled experience and calls out systemic ableism that radically diminishes the lives of disabled folks. This provocative, insightful book is essential reading for anyone committed to the work of inclusivity, diversity, equity, and access. - Laura L. Ellingson, PhD, Patrick A. Donohoe, S.J. Professor of Communication, Santa Clara University and author of Embodiment in Qualitative Research
Redefining Disability brilliantly takes readers on a tour through disabled people's lives. It skillfully talks frankly and directly to readers through a delightful array of short and pithy chapters covering expansive topics such as disability and pets, the COVID-19 pandemic, disclosure in higher ed, and being chronically ill. There are photographs and poems, short essays and longer ones. It’s at times emotionally raw and other times fun. To make this book extra-teachable, each chapter ends with discussion questions. A celebration of the act of telling disabled people’s stories, Redefining Disability is a must-read. - Laura Mauldin, PhD, NIC, Associate Professor at the University of Connecticut and author of Made to Hear: Cochlear Implants and Raising Deaf Children
Redefining Disability is a collection 100% shaped by disabled people, not just through the individual chapters and the perspectives contained in the book, but all the way through editing and indexing. The book takes aim at ableism and discrimination against disabled people through critique, with humour, with powerful imagery and art, with indelible writing, and does so from a diverse range of perspectives. But the book, its authors and editors, are also very intentional about accessibility, modeling the values it promotes with a clear and engaging introduction, through plain language and careful explanations and definitions, and with terrific discussion questions. The result is a book that could be taught in high school, College or University, but also is distinctly non-academic in its appeal. Redefining Disability captures and conveys disability culture and community more successfully, accessibly, and compellingly than any other book you could pick up. - Jay Dolmage, PhD, Professor of English, University of Waterloo and author of Academic Ableism: Disability and Higher Education and the founding editor of the Canadian Journal of Disability Studies.
Redefining Disability offers a unique and vivid combination of lucid explanations and evocative accounts. Featuring essay, narrative, poetry, and photography, this outstanding collection opens a creative window into the richness of disabled experience and calls out systemic ableism that radically diminishes the lives of disabled folks. This provocative, insightful book is essential reading for anyone committed to the work of inclusivity, diversity, equity, and access. - Laura L. Ellingson, PhD, Patrick A. Donohoe, S.J. Professor of Communication, Santa Clara University and author of Embodiment in Qualitative Research
Redefining Disability brilliantly takes readers on a tour through disabled people's lives. It skillfully talks frankly and directly to readers through a delightful array of short and pithy chapters covering expansive topics such as disability and pets, the COVID-19 pandemic, disclosure in higher ed, and being chronically ill. There are photographs and poems, short essays and longer ones. It’s at times emotionally raw and other times fun. To make this book extra-teachable, each chapter ends with discussion questions. A celebration of the act of telling disabled people’s stories, Redefining Disability is a must-read. - Laura Mauldin, PhD, NIC, Associate Professor at the University of Connecticut and author of Made to Hear: Cochlear Implants and Raising Deaf Children
Redefining Disability is a collection 100% shaped by disabled people, not just through the individual chapters and the perspectives contained in the book, but all the way through editing and indexing. The book takes aim at ableism and discrimination against disabled people through critique, with humour, with powerful imagery and art, with indelible writing, and does so from a diverse range of perspectives. But the book, its authors and editors, are also very intentional about accessibility, modeling the values it promotes with a clear and engaging introduction, through plain language and careful explanations and definitions, and with terrific discussion questions. The result is a book that could be taught in high school, College or University, but also is distinctly non-academic in its appeal. Redefining Disability captures and conveys disability culture and community more successfully, accessibly, and compellingly than any other book you could pick up. - Jay Dolmage, PhD, Professor of English, University of Waterloo and author of Academic Ableism: Disability and Higher Education and the founding editor of the Canadian Journal of Disability Studies.
Paul D. C. Bones, Ph.D. (2015), University of Oklahoma, is Assistant Professor of Sociology at Texas Woman’s University. He has published articles and book chapters on disability, hate crime, and criminology. This includes a recent article on access and accommodation during COVID-19 published in Socius (2021).
Jessica Smartt Gullion, Ph.D. (2002), Texas Woman's University, is the Associate Dean of the College of Arts and Sciences and Associate Professor of Sociology at that university. She has published extensively in medical sociology and qualitative research methodology, including the award-winning Diffractive Ethnography: Social Sciences and the Ontological Turn (Routledge, 2018).
Danielle Barber, M.S. (2018), Texas Woman's University, is a doctoral candidate in Sociology at that university. She conducts research on health and illness and on disability.
Jessica Smartt Gullion, Ph.D. (2002), Texas Woman's University, is the Associate Dean of the College of Arts and Sciences and Associate Professor of Sociology at that university. She has published extensively in medical sociology and qualitative research methodology, including the award-winning Diffractive Ethnography: Social Sciences and the Ontological Turn (Routledge, 2018).
Danielle Barber, M.S. (2018), Texas Woman's University, is a doctoral candidate in Sociology at that university. She conducts research on health and illness and on disability.